RDEB Medical Care
Tips for bathing and cleansing
COMING SOON
COMING SOON
COMING SOON
COMING SOON
Bandaging
Diet &
Nutrition
Main
Eyes, Ears
& Nose
Physical
Therapy
Things to prepare for remember during common EB surgeries and procedures
Warning - graphic pictures of actual EB wounds and blisters
Teeth, Mouth
& Throat
Surgeries & Procedures
This page was last updated on: December 22, 2007
Bathing
Clinical
Pictures
Welcome to my RDEB Medical Care page!
The information and suggestions on this site is taken from my own experiences of living with Recessive Dystrophic Epidermolysis Bullosa, suggestions from others with EB and their parents, information I've compiled from other online resources and from doctors themselves. However, please do not change your treatment regime without consulting your doctor first!
Most of this information is directed toward older children/teens and adults with the Recessive Dystrophic form of EB. For specific information on caring for EB newborns and young children or other forms of Epidermolysis Bullosa please visit the following links:
www.debra.org
www.debra-international.org
www.ebinfoworld.com
Attention: The information on this site is not meant to take the place of a qualified physician.
COMING SOON!
COMING SOON!
COMING SOON!
COMING SOON!
How to manage Anemia in EB
Anemia
Common problems in EB relating to nutrition
Nutrition Problems
Tips on how to puree food
How to
Puree Food
Tips on boosting nutrition in the diet
Boosting
Nutrition
Soft and puree recipe ideas
EB Friendly
Recipes!
Feel free to contact me with any comments or questions about my site or EB.
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